Settling Down For The Night

We are finally settled down a bit in here. Jayden's oxygen levels have been ok, but he is sounding really junky and they can't clear his airways really well, so we're hoping the extra meds give him the boost he needs to get over this and get home to playing and stealing his brother's trains:).

They are going to continue working on the additional labs they have been ordering. We are accepting that we may not get a diagnosis and may just have to keep treat the issues as they arrive, but if we can get him stronger, that should help.

Since the beginning of the year, Jayden has lost a good amount of the weight he has gained since starting the feeding tube so we are not sure where we are going to end up with any of this stuff. He isn't getting any worse, but wasn't getting any better after 5 days of antibiotics and steroids, which is mainly what put us here.

The docs said we will be here at least a few days.

Good news: his lung biopsy finally did come back and it looks like he does not have primary cilliary dyskenisis and the rapid RSV test came back negative too, so at least his Synagis shots seem to be doing something.

Thanks for the prayers and keep them coming. We are hoping to head home by the end of the week:).

(The picture is from a few weeks ago, but it's one of my favorites I've taken of him so far.)