Two New Movies
I put up a new video of Ethan singing songs (including one he made up) and Jayden doing all kinds of stuff. You can see them here. Enjoy!
Read more...Wednesday, October 29, 2008
Tuesday, October 28, 2008
Immunologist Update
Jayden had an appointment with the immunologist on Monday at CHOP. It was a long day, but may help us pinpoint what has been going on with him. The long and short of what they told us is that they were going to do a whole bunch of in-depth blood work and if the problem is with his immune system, the blood work will be able to identify the big issues and we can go from there. They examined him, but when looking at the immune system you really have to do blood work.
They are focusing on looking at his blood to make sure it is making the right number and the right quality of antibodies. One thing they said is a baby gets antibodies from the placenta before they are born and those last until about 4-6 months. At that time, the baby's own antibodies should kick in and if they don't they may have a lot of problems like not gaining adequate weight and have developmental issues as well as being sick.
Anyway, we just have to wait and see if his blood work comes back normal and we'll go from there. If it does, we will continue with the new pulmonologist and likely the geneticist but we won't likely have to keep the immunologist on our list of regular doctors.
Thursday, October 16, 2008
Sleeping Boys
I love sleeping baby pictures! Ethan's cracks us up because he was sleeping with his sunglasses on upside down, his choo-choo blanket and the multi-colored blanket mom made him and it was 78 degrees outside. There's also a cute one with Jim and Jayden.
Sesame Halloween
We visited Sesame Place for the Count's Spooktacular. The boys were enjoying it, although I think Ethan was a bit confused why some of the pools were empty and pumpkins had appeared. Ethan's favorite rides are the construction machines that are along Sesame Street that no longer work and the manual train - go figure:).
Thursday, October 02, 2008
Quick Update - Good News
So we got some pieces of good news about Jayden today - his WBC rose up to 1800. That means he although he is still low, he is nowhere where he was before and a lot further away from that critical level. So we still have to figure out why he is off, but hopefully we can do that in a few visits.
It looks like when he gets sick, when his WBC should get higher, instead it goes very low and when he is ok, it is still low, which makes sense that while he catches nearly everything like most little babies, he can't fight it off on his own. Now we need to try to figure out why.
His genetic testing for CF came back negative! We are so happy about this. They tested for the 70 most common mutations associated with CF and they were all negative which is fabulous news.
Anyway - some great news for my birthday:)
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