Good News

So we took Jayden to his pulmonologist today and we discussed everything from our last hospitalization and their prognosis.

Jayden's breathing problems are officially diagnosed as tracheobronchomalacia. It is essentially the same problems we described with the bronchomalacia except it also affects his trachea. Dr. K said although he is struggling right now, the good news is that 90 percent of kids outgrow this by the time the reach 3 years old - which means we may be halfway through:). He said it is unclear whether the cartilage actually gets stronger or their airways just get big enough that the collapsing doesn't affect them as much, either way he has a good chance of outgrowing a lot of this.

As for the weight gain, he is finally gaining a little above his curve (which he really should since he is so far below the curve he's probably setting the bottom 1 percent and we can't possibly add more calories in his day). We are hoping the IPV is giving him the extra help and releasing pressure on his lungs. They said maybe by mid summer we can totally get him off of the tube and not have to consider any permanent options.

His lungs are still capturing a lot of air inside and it's not moving around wonderfully, but hopefully over time that will change.

The best news is that winter is nearly over and we will have survived another crazy winter! We are so looking forward to spring and getting to finally visit friends and family again:).

Thank you for your continued prayers and support!