We've been enjoying some hot, quiet summer days. We can't believe August is nearly over already. In a few weeks Ethan will be heading to school, but we are still hoping to fit in a trip to the shore and some other fun sites before then. 
Not much news, which is great:). We just started the next round of doctors visits last week.
Jayden gained about 10 ounces since June (about 10 weeks) and although that's not a lot with all the calorie supplementation, it's something. He just hit 21 pounds and is staying in the 2 percentile, which is better than the 0:). The goal is to get him to the 10th percentile before trying to ween him from the 1200 calories he intakes in fluids daily. The doctors have expressed concern over the upcoming winter and flu season, especially with the H1N1 strain, but we are praying our usually precautions along with the additional nursing coverage will help us get through.
His lungs have gotten the longest rest they have ever had without constant sickness, which we pray makes them stronger to fight off the infections and viruses. With the nurses, we should be able to keep him inside all winter except for doc appts. while still getting a little bit of a break to rejoin the human race once in awhile:).
Although he still needs multiple daily treatments, we have been able to cut many of them in half and been able to be off antibiotics for almost 4 months as well as no oral steroids for 4 months. Hopefully when we do need them again, his body will respond to them quickly.
We are sad to be seeing the end of summer and not sure we are ready for the crazy wintertime again, but given the choice we would love to not have to worry about it and doubt we are ever ready to jump back in. Praise God we get a break in between. So many families i have met do not get the luxury of a "sickness break" and we are so grateful we do.
Other than that he is growing and just enjoying life. He has even learned how to throw little temper tantrums, which don't last for long because he doesn't like time out. He and his brother are inseparable and a ton of fun, but also a ton of trouble. Please continue to keep him in your prayers. God bless!
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