A Little Under the Weather

We seem to have caught a cold, and of course, Jayden caught it. He went to the doc on Friday because his breathing was getting really bad and we put him on oral steroids and a strong antibiotic. He went back yesterday and they said he sounded good, but it was right after his treatment (literally within a half hour) so we are not sure if it was a false hope.

We are doing around the clock treatments with nebs every 4 hours. He is lasting about 2 1/2 but we are hoping we will see an improvement tomorrow.

The good news is his meds are working in terms of bringing his breathing under control, at least initially. His respiratory rate was up to nearly 70 on Friday and as soon as we did his treatment, it slowed to 40 again. Usually at 60 they consider kids in distress, but at least it is coming down.

We have been trying to get Jayden to drink the same amount of Peptamen without the tube because his nose and stomach were getting so irritated he was having a lot of bleeding. He is drinking it, but in two weeks he hasn't gained an ounce so we are pretty sure they will put him back on the tube. Still, it has at least been a nice break for him and hopefully he will be off it this summer sometime.

I will write an update tomorrow or Tuesday after we visit the geneticist. We are just praying we can keep Jayden out of the hospital and that he will turn around soon. He hasn't gotten any worse in the last day, which is definitely a blessing.