We're Home

We got to come home, but with the day being a very long day and a lot going on, we just kinda crashed so sorry for the late update. Jayden did really well overall. Here is what we know:

His right lung was very filled with fluid and mucus. It was the same problem he had last year, but this time it wasn't infected (probably due to the two months of strong antibiotics and intermittent oral steroids he's been on). It still shouldn't be there though, so we have to figure out why it is there.

They hoped to rule out primary ciliary dyskensis, which is essentially where the cilia in the lungs doesn't move the mucus through like it's supposed to. They couldn't because of the lung full of fluid, but sent a biopsy and should get test results either way in a few weeks.

The GI tract (stomach, intestines, colon) looked alright when they went in. They took samples that will tell them if his enzyme levels and vitamin levels are alright, but the tissue looked good.

The CT scan looked alright, but the doc only had a quick glance at it due to time and was going to look more closely this weekend.

The five biopsies they did in GI should be in result-wise in the middle of next week.

He's doing alright now. He's cranky and probably a bit uncomfortable but is at home, so that's good.