Some Test Results

We got back some results for Jayden yesterday. The GI specialists said the biopsies were generally normal. He had some gastritis in his stomach and some abnormal cells indicating a mild allergy in his lower bowels, but nothing too serious in the GI tract. We will have to wait a few weeks for the pulmonology results.

We still need to figure out what is causing the constant fluid in his lungs, but it does not look like he is aspirating from his reflux. Maybe the primary ciliary dyskenesis testing will tell us more. If it is inconclusive, they would like us to travel to North Carolina for more testing, but we are just taking it one step at a time.

The plan is to keep his tube in for at least a few more months and then, hopefully, he will be able to go without it. His synagis shots seem to be helping and he has only had to do the oral steroids a few times since winter began, which is too bad for him.

Truthfully as long as we can keep him relatively healthy, we're happy:). We are so grateful that his hospitalizations haven't been because he is in acute distress lately. Thanks for all the prayers - we really do appreciate them!