One Year Mark

Yesterday we celebrated Jayden being hospital free for a year. It was huge! At this time last year I was so worn down and thought we would never make it to this point. We made yummy cookies (which the boys happily ate) and played in our snow and just enjoyed the day together.

He still has a ton of meds and therapies and nursing, but he has made it to the five percent in weight and nutrition is even talking about letting us cut down on the nutritional drinks in a few months. We are going to work on backing off the meds in the Spring and see where that leaves us.

He hasn't had a smooth beginning, but we are blessed by what a winter we have had so far.