Still Trucking Along

Ahhh - another Jayden update. We visited GI and pulmonolgy in the past week. The overall verdict of those docs, as well as his general pediatrician is that he is still struggling with weight. Since we removed the NG tube less than 10 days ago(because of the strangulation hazard) he has dropped 1/2 pound. Obviously this is not great and his weight had been leveling off as well. The GI docs gave us fruit juice with 250 calories per 237 mL and 9 grams of protein as well as peptamen with 375 calories instead of 250 per 250 mL. The biggest challenge is to get him to take that and continue to eat throughout the day normally.

If he drops any more weight or doesn't gain, he will probably get a G tube inserted. It is relatively routine, but the docs would have to make an incision in his belly and then into his stomach for placement. It is semi-permanent, meaning they could/would remove it when they establish he is doing well gaining weight and not having major issues. Obviously there are always risks associated with this and if we can avoid cutting into his stomach, we would gladly do it. We are praying things turn around before this, but if he needs it, we are preparing for him to go down that road. If he gets one, he will have a relatively short hospital stay as long as he does well.

He is doing well now and we hope he stays well enough this summer to gain weight and strength. Keep up those prayers - you know we depend on them:)