On The Right Track

Jayden had a great night last night. He did not throw up again and the slowly increased his feeds to 25ml/hour. The goal is 40 ml/hour. If he does well again tonight, they may let us go home tomorrow because they are nearly done collecting the samples (blood urine, stools) they need to collect.

Jim was a rockstar last night and successfully inserted the feeding tube, tested it and got him set up for the night. I reinserted it this morning and will be in charge tonight. Then we will do it at home for awhile while he hopefully gains weight.

They have not weighed him today, but hopefully his gain will be positive.

His lungs are improving as well - just an added bonus. It has been a bit of a break for Jim and I to not have to administer every breathing treatment and med as well.

Many of the test results will trickle in over the next several weeks and we'll see how it goes. There's no point in us staying here after we get set up as long as he is doing well, so that's great for us.

Not much else fun. The weekends are quiet as many of the labs are done only throughout the week and the docs tend to just check in and keep the status quo more or less.

Besides the tests, he has been as happy as usual and he and Ethan were having fun playing with the trucks child life brought into us.