Up To No Good?
Ethan decked out as a shoeless fireman. He looks like he's getting ready to do something he shouldn't:). You can also see more videos I added last night and over the last few days of both boys at on our site.
Ethan decked out as a shoeless fireman. He looks like he's getting ready to do something he shouldn't:). You can also see more videos I added last night and over the last few days of both boys at on our site.
So Jayden came home tonight. He had an unidentified virus that caused the respiratory issues and a weird rash, but is doing a lot better. They weren't sure we'd go home today, but luckily they decided at 8 pm we didn't have to spend the night because he did pretty good and was finally eating enough (with a little prodding from mom:). Thanks again for all the prayers and please pray the rest of winter is uneventful for him and he is able to just be a healthy baby.
Read more...Great news - he tested negative for RSV this time so he may just have bronchiolitis caused by another virus. We are in a regular room and if he does ok with his breathing, we may be allowed to go home as early as tomorrow. They said he may have hit the worst of this one this morning. A quick stay isn't so bad, but please keep up the prayers because we will need them to make it through the rest of winter:).
Read more...Jayden is getting readmitted into CHOP. He is not going to be in the NICU this time (hopefully at all) but they think he has bronchiolitis again from another strain of RSV. We will let you know when we get chest xrays and the mucus tests back.
Read more...
I am enjoying our time at home now that Jayden is home. Jayden is still sick and will likely be for another week or two, but is also improving, which is great.
The doctor said when he was admitted to the NICU his lungs were holding the most fluid they could hold without shutting down, which is why he was admitted into the NICU and not just the hospital. She said he was one of their most severe RSV cases they've had this year. Praise God for all the prayers and that he is recovering so well!
Now we just have to get through the rest of the cold/flu season without him catching something else. The doctor said that is the biggest threat to him and could be very harmful if he caught something. When it's put that way, it's not too difficult to become a shut-in for awhile.
Onto something not health related(it is so nice to be able to do that).
Many people have asked us about why we picked the name Ethan and even more about why we picked Jayden.
The biggest reasons were
So we are starting to get back to normal, although Jayden may still be sick for a few weeks. We were very blessed this week to have both of our moms come up at different times to help with Ethan while Jayden was in the hospital. We would've liked it to be under different circumstances, but we were glad they were up here nonetheless.
Because of when Jim's mom came, we didn't get any photos since Jayden was much sicker when she was here. By the time my mom left, he was so much better and so we have a few photos to share.
The doctors came in and said Jayden has made such good progress we can be released TODAY:). They said he isn't 100% and won't be for awhile, but because he is doing ok off the oxygen and other help he needed until yesterday evening, and because he is eating well we can bring him home.
Thanks to everyone who has offered prayers for him. This virus is very scary and does kill some babies every year. While we knew that, we were praying he was strong enough to fight it off. We will have to be extra careful with him in the next year, but he should make a full recovery.
Thank God our little one is on his way back. He even was playing and awake a bit this morning before wearing himself out eating - he is a true Lozano / Neels .
Jayden is doing well and the doctor said the could move him out of the NICU today but no beds were available. If he continues to do well throughout the night we may be able to go home! We are praying he will let us know if he is ready, and if he is we are looking forward to the possibility. He still has a terrible cough, but the biggest key is keeping him off of the oxygen and whatever we can't already do from home.
Read more...Jayden made some good progress today. He was finally able to nurse again and I don't think I've ever seen him so happy or content. They warned me he may have a lot of problems and may not take to it right away again, but they were wrong.
He was very happy to be nursing again and so far has not had much respiratory distress while nursing, which means he can keep doing it. His oxygen levels have been reduced again and we're getting to even talk about maybe getting released from the NICU. We may be in the regular hospital for a bit, but it all depends on how he is doing with returning to normal.
We were happy to see him finally smile a bit again and start cooing, so he's finally getting back to his old self.
An additional blessing ... he tested negative for whooping cough so although he is still in isolation, no one has to wear masks anymore around him.
Hopefully we will have more good news as the week progresses. Keep the prayers coming:).
Jayden was baptized today in his cozy room 2026E at the NICU. Mom actually got here right before the baptism and was able to be with us. A sweet nurse took some photos for us as well. We will have a ceremonial christening later, but he won't be rebatized because once you're in, you're in...lol:).
As far as his health, he is still improving and the are optimistic he may be turning the corner. He still is on oxygen and IV fluids, but is taking more milk through his feeding tube and may even get to nurse by tomorrow evening or Tuesday.
Thanks again for all the prayers. We are optimistic we may be able to bring him home later this week.
They are increasing his feedings but haad to increase his oxygen again. Now that I have my cameras up here I am having fun taking photos - every day is a photo op. He is one of the biggest babies in the NICU (as is evidenced by his bed). More tomorrow:)
Jayden is stable right now and possibly improving a bit. He is still on oxygen, but they are letting him eat a little through a feeding tube today and seeing how he takes to it. He still has a nasty cough and we are not sure the results of the pertussis tests yet, but is actually a bit alert and is not constantly panicking every time he has a coughing attack.
We have amazing doctors and nurses and the support staff has been great too.
You can put in for sleep rooms and I have been blessed to get one every night, which is wonderful because I can stay right down the hall from him, but still get some sleep.
Thanks for all the prayers and keep them coming. We are feeling the effects.
Love,
Ria
PS: Here is some info about RSV on the CDC web site. Jayden has a severe case, but is doing ok:).
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